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Reply to "Help Develop a New Data and Performance Measurement Framework for Mental Health and Addictions in Ontario"

Oh what the heck...

These are some of my suggestions that I submitted regarding the draft logic model and scorecard  for the new data and performance measurement framework ....

Comments back to survey that I sent in...
I am not sure if I would call them gaps so much as "areas of concern" for me. Being a person with lived experience and also a family member and also a lived experience/systems level advocate ...I look at this with those three filters.

1) The indicator for "Effective" is years of life lost which is imperative but the other indicator is suicide. What about accidental overdose given the explosion of opioid deaths?

2) The indicator for "Safety" is limited to physical restraints but is it worth trying to explore a way to capture (harm) critical incidents that happen in hospital and/or addiction residential care or wherever 'harm' may happen in the trajectory of care. That may be too big an area at this time but thought I would mention

3) For "wait times"..is there any way to capture the 'quality of wait time?". For example the difference between being on a wait list and just waiting in empty space compared to providing peer support or some extension of 'service' that mitigates that wait by adding in some type of 'caring' while waiting?

4) For 'client centered' the first suggestion I would make is that you rename that to "Person centered" and reflect that throughout the work. As long as we are referred to as clients, patients, consumers etc....it allows us to become 'less human'. The biggest failure in the system has been the objectifying and the biggest/easiest win is to humanize wherever possible.

I really like the 3 indicators for 'client' centered but wonder if there is a way to add a 4th which would be a 'customer service' lens. Did people smile? Were they warm and attentive? Did I feel safe? (I realize that one may be a bit harder to define but it is different than being overtly stigmatized and/or discriminated against)
HUGE thanks for having family/caregivers as an indicator.

5) On the logic model I like that you have stated 'evidence based decision making and practice' compared to the language of best practice. So I guess my overall input on this would be an acknowledgement of the wider parameters of what evidence should be. (Lived and family experience is evidence base-experiential evidence) Is there a way to put that into context? I also wonder if it would benefit this initiative to 'speak to' the need of melding medical/clinical modalities with the social change/social justice modalities so there is room to capture emergent, innovative, allowing an iterative process and some malleable parameters through developmental evaluation(s).....

Betty-Lou Kristy

Lived Experience/‘Family’ Advocate- Mental Health, Addiction, Trauma & Bereavement

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