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Reply to "Recruitment call for Family/Friend Caregiver Survey- health condition, physical or mental disability, substance use/addiction condition"

Hi Goldy;

I thought your background was science and I absolutely think you are amazing because it is obvious how passionate you are about combining the intellect with compassion etc.  I really admire that perfect combination because it is the cross road of where we all can be part of the solution.

 

Humanizing is very important to me (as it is to you) and one of my key messages when I am presenting, advocating and at systems tables/initiatives. Sometimes science, governance, policy but even society in general forgets that we are all fellow humans along this life journey. I am often astounded by the level of stigma, cruelty and lack of emotional connection that people have.

 

"Real People. Real Lives." is hopefully the reminder that 'we' are not just data. I want to be counted and I want my late son to be counted; so we can inform data collection & research, to help drive policy, funding and relevant meaningful change.

 

I am encouraged though (as long as I keep my rose coloured sun glasses on) because I am discovering that even the 'prickliest' of individuals and/or systemic issues does seem to have a 'soft spot' once you disarm the armour and veneer.

 

Betty-Lou Kristy

Lived Experience/‘Family’ Advocate- Mental Health, Addiction, Trauma & Bereavement

 

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