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Reply to "The Dynamics of Disability: Progressive, Recurrent or Fluctuating Limitations"

Jenny T posted:

The debilitating nature of episodical is dismissed, in addition of dismiss the aftermath suffering and prolonged recovery. Each of such recovery requires the suffer's steely strength for not giving up.

Some government agency told people reporting weeks of hospitalization due to mental crisis. The response was 'okay, your disability lasted 2 weeks. The requirement is 90% of time'. And worse, other agency would use this as a proof that the episodical disabled is not DISABLED. 

Thanks, Jenny T, you are so right, on the journey, the story behind the stat.  The stat does not capture the context, getting way too bureaucratic.  This report needs a lot more discussion of its meaning.  I had posted as a way to encourage more refection within the care system, but you are taking it further.

My own intention around sharing the report was to put emphasis on the fluctuating, episodical dynamics as being highly relevant to our understanding of care and support approaches - who qualifies, who fits etc. to advance our approaches to care, disability and the ideas that circulate about on "recovery.' 

I find that the great efforts of the Mental Health Commission  -  Out of the Shadows at Last: Transforming Mental Health, Mental Illness and Addiction Services in Canada report of over a decade ago needs new life and focus as I believe the Commission was aiming for deeper action and thoughts on mental health than - "episodiacal disabled is not DISABLED."

I'm wondering who will or already has, taken up the discussion, perhaps CMHA Ontario?   But we need a whole lot more than one organization to stop the merry go round of "hospital days," which seems to still drive the system of care.

 

Last edited by Registered Member
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