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I think this report  from Statistic's Canada framing the dynamics of disability is a pivotal foundation in our efforts to: frame planning, understand and approach how we ensure continuity of care and transitions with systems, care planning.

STATS CAN REPORTc-g01-eng

...“Continuous” is the conventional definition of disability, and is the most commonly considered definition in government social assistance programs, but the report shows that three in five people with disabilities don’t fit that conventional view. Mental health disorders, for instance, may be episodic in nature and wouldn’t fall into the traditional “continuous” definition, but could often be considered progressive, recurrent or fluctuating. ...

Thanks to CMHA Ontario for advancing this.

http://ontario.cmha.ca/news/st...ics-of-disabilities/

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The debilitating nature of episodical is dismissed, in addition of dismiss the aftermath suffering and prolonged recovery. Each of such recovery requires the suffer's steely strength for not giving up.

Some government agency told people reporting weeks of hospitalization due to mental crisis. The response was 'okay, your disability lasted 2 weeks. The requirement is 90% of time'. And worse, other agency would use this as a proof that the episodical disabled is not DISABLED. 

Jenny T posted:

The debilitating nature of episodical is dismissed, in addition of dismiss the aftermath suffering and prolonged recovery. Each of such recovery requires the suffer's steely strength for not giving up.

Some government agency told people reporting weeks of hospitalization due to mental crisis. The response was 'okay, your disability lasted 2 weeks. The requirement is 90% of time'. And worse, other agency would use this as a proof that the episodical disabled is not DISABLED. 

Thanks, Jenny T, you are so right, on the journey, the story behind the stat.  The stat does not capture the context, getting way too bureaucratic.  This report needs a lot more discussion of its meaning.  I had posted as a way to encourage more refection within the care system, but you are taking it further.

My own intention around sharing the report was to put emphasis on the fluctuating, episodical dynamics as being highly relevant to our understanding of care and support approaches - who qualifies, who fits etc. to advance our approaches to care, disability and the ideas that circulate about on "recovery.' 

I find that the great efforts of the Mental Health Commission  -  Out of the Shadows at Last: Transforming Mental Health, Mental Illness and Addiction Services in Canada report of over a decade ago needs new life and focus as I believe the Commission was aiming for deeper action and thoughts on mental health than - "episodiacal disabled is not DISABLED."

I'm wondering who will or already has, taken up the discussion, perhaps CMHA Ontario?   But we need a whole lot more than one organization to stop the merry go round of "hospital days," which seems to still drive the system of care.

 

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Hi @Jenny T and @Betty Lou,

This research survey on "Episodic Disability" and ODSP, is useful to check out.

Call for participation from people receiving #ODSP!
From Invisibility to Inclusion: Episodic Disability in Ontario Workplaces is seeking interviews with people living with chronic illness or fluctuating physical, neurological, or mental health conditions who are on ODSP.
To schedule an interview or for more information, contact Elisabeth Harrison at eharri20@uoguelph.ca or 647-955-8260
60-90 minute interview — $20 compensation
Principal Investigator: Dr. Donna Lero,
University of Guelph
. This project has been reviewed by the Research Ethics Board for compliance with federal guidelines for research involving human participants (REB#18-12-025)
Image description: The call for participation poster, which has the exact same info as this caption, in black, white, and yellow.
episodic

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