CLOSED: Looking for Participants: “Building a Framework for Supporting Meaningful Family Caregiver Engagement” Research Project
“Building a Framework for Supporting Meaningful Family Caregiver Engagement” Research Project
If you are a caregiver of someone living with mental illness or a substance use and concurrent disorder – OR if you are a mental health service provider – we need your input on what meaningful caregiver advisor engagement looks like.
Based upon your input, we will be designing and publishing educational products to help organizations and institutes formulate policies, engagement practices and mechanisms to meaningfully collaborate with caregiver advisors in the future. These knowledge products will be publicly available on https://www.theroyal.ca by September 2021.
To participate, you must be
- an Ontario resident
- 16 years of age or older
To help us, please complete one of the following short 15-minute surveys which will ask about your needs and your perspective on working as a, or with, caregiver advisor(s). No personal identifiers will be collected to ensure your responses remain anonymous. Your participation is entirely voluntary and confidential.
If you are a Caregiver and…
…you have previous experience as a caregiver advisor for a mental health organization or institution, please select this survey:
https://corexmsr7gvfzmptltx6.c...m/SV_a9jCOFeYQkj8mSp
…you have no previous experience as a caregiver advisor for a mental health organization or institution, please select this survey:
https://corexmsr7gvfzmptltx6.c...m/SV_eh5xd9ZEnej64bX
If you are a Service Provider and…
...you have previous experience working with a caregiver advisor for a mental health organization or institution, please select this survey:
https://corexmsr7gvfzmptltx6.c...m/SV_9M17JL4CxFZltlz
…you have no previous experience working with a caregiver advisor for a mental health organization or institution, please select this survey:
https://corexmsr7gvfzmptltx6.c...m/SV_eWL5MDH66dUdhE9
If you have any questions, please contact Alexis Dorland at Alexis.Dorland@TheRoyal.ca.
A good example of respecting multiple perspectives to have a sharper more "meaningful," information.
An approach that hints at the idea of Co-design and substantive approaches all can work from.
Bill. I LOVE that visual!
I did the survey and I really like it. I think this work is important. I did mention to Cynthia yesterday that the "gap" was those of us that have lost our loved ones. There is an area asking basically who you are a caregiver for" (in my case my son) and then it asked for his age. I wasn't able to put in that he died of opioid overdose at age 25. The survey blocked anything but a number. In the following section it asks basically what "stage" your loved one is in and there was no option of "died" overdose, so I had to go to that comment section and say that he died.
I recognize that the survey probably had to follow process/methodology for validity and reliability testing but I actually feel there are a LOT of us, sadly, that have lost our loved ones to either suicide or accidental overdose. We serve as caregiver advisors from that perspective.
Please know that I am not being critical. I actually think it is a very good survey other than that, and it is still really important for others to fill it out.